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Do you think I am on the right track?

Casper3's picture

I am new here and have found a lot of the discussions to be helpful. I love the venting option :-). I am looking, I guess, for support. I would like to know that I am not a completely evil person for how I feel about my SS12 and how I have decided to handle the situation. I little imput from you all would be welcome as well

For a little background, I have 2 SS's and a DD2. SS10 is a completely normal little boy. He's into football and video games. He makes messes and eats like there is no tomorrow (frustrating). But he also attempts to live by our house rules and he is very easy to get along with. I get a kick out of the kid. I have been in his life since he was 3 years old and he and I do pretty well. There is a barrier there, but he is becoming aware of girls and we are not mother/son so I think it is normal for a distance to be there (it is certainly more comfortable than the thought of having him hang all over me and give me tons of hugs and kisses). Anyway, it works for us.

DD2 is a completely normal 2 year old. She tests her boundry's but DH and I mostly agree on our parenting technique so we are consistant with her. I believe she will come through this stage fine (I'm not so sure about us ;-).)

SS12 is an entirely different story. At age 5, he was diagnosed with ADHD and his BM put him on Ritalin. Over the past 7 years, he has been diagnosed with ODD, Asperger's and, most recently, depression (ya think!) BM should be banned from Google. Everytime she looks up a disease or syndrom, I get an email or a conversation starting with "Listen to this, it is so SS12". She then goes to the dr and gives him/her all the symptoms SS12 is currently showing and boom...SS12 has a new diagnosis and a new med to go with it. Symptoms that DH and I don't see (outside of ADHD, there he is textbook). SS12 is currently taking a med for Schizophrenia, one for Bi-Polar Disorder and one for depression. All at adult dosages and only one of these has been tested on kids. The side affects could be frightening.

He is in a specialized program at school where he is not expected to read or do math at the level of the rest of his class. He is not expected to do Social Studies, Science or Geography at all (this kid doesn't know the capital of his own state). He is not expected to do any homework because he won't remember to turn it in. And he failed every class this year and last year except for Music (even PE...How do you fail 3rd and 4th grade PE?). And it has been made clear to me, and therefore to him, that SS12 is not required to take any responsibilty for himself. So, whenever he lies it is because he forgot the truth. When he steals, its because he forgot that it didn't belong to him. When he hits, it's because he couldn't help it and the other person (normally his brother) did something to make him hit. When he tears up or loses his or other people's things, it is because he forgot how to take care of it and how not to tear it up. When he neglects to do his chores properly (after already being told to do them step by step 3 times), it is because he forgot how.

I, of course, get frustrated with him. The last time, though, DH corrected me in front of him and told me that I knew that SS12 has problems and can't be expected to know our rules (he has been in our home EOWE and all summers since he was 4). My response was that DD2 has only been in our house for 2 years and she has the rules figured out }:) I also let DH know that not backing me up just lets SS12 know that I don't run my house and that it will not happen again. So far so good.

BM most recently put SS12 in Special Olympics. Really!! So here is this perfectly normal, outside of the meds, kid (ADHD is not considered a intellectual disablility) competing against these kids that have true struggles in their lives. Walking and running is a challenge for them. I am completly humiliated when SS12 is out there beating them by a mile. So now he has won state in all of his events and is eligible to go to Nationals next summer. When talking to DH about the situation, he says he is fine with SS12 being in Special Olympics as long as he is having fun. He does feel bad that the other kids don't have a chance though. I told him that I think this is wrong and that I do not support it. That I believe it is damaging to SS12 to believe that he is disabled when his biggest disability is his BM and BF not believing in him and standing up for him. I also said I would not be taking a week vacation next summer to go to nationals. I have also quit asking SS12 to do any chores that I can't oversee. I will stand there and tell him step by step what to do as he is doing it. Frustrating to everyone but at least I don't yell because I no longer expect him to just remember.

What do you all think? I am not crazy for backing out at this point am I. I can't just sit there and act like it is ok. I keep hoping if I treat him like he is this disabled like his BM is telling him that he will revolt and stand up and say "I'm not like that". I just don't know if it will happen. Poor kid.

Comments

Casper3's picture

Several symptoms are ADHD symptoms so its easy to get there and then the kid is intellectually disabled. Our BM has already said that she doesn't think that SS12 will be able to live on his own at 18 so DH will have to pay CS until SS12 can.

Casper3's picture

In addition to the Ritalin, he has been on or is currently on the following: Adderall, Dexdrine, Risperidone, Lamotrigine and Zoloft (just in case he's a little down).

Casper3's picture

At times. It is not something he really complains about though. I think it is so normal for him that he doesn't think it is weird. I do get quite a few complaints of his stomach hurting though.

popgoesmybraincells's picture

If his BM and BF are treating him like he's disabled and are "coddling" him, then it's going to be very hard to break him out of that mindset. That may very well be why he's slacking off with chores and school. It's like you said...if they are not letting him take responsibility for anything because he's "special", then what's going to happen when he becomes an adult?

My SS loves to use the "I forgot" excuse. His father has a 5-second memory though, so I think half of it truly is forgotten, but the other half is just using it as an excuse. It's incredibly annoying. Maybe a visual list of chores might resonate more with him than verbally telling him what to do. I know that pictures work well with my SS (he's 6 1/2) and he will actually be more likely to do something if he sees it visually rather than hearing me tell him. I think that is actually a major problem with autistic-spectrum kids. This probably isn't the case with your SS12, but it might be something to consider.

I agree that after 7 years of medication, he definitely should be in counseling as well to learn some coping mechanisms. He's definitely old enough that I would think they'd like to try taking him off the medicine (or at least bringing down the dosages).

As for the medication...yes, that does seem like a lot of medication for a child to take. Risperdol/Risperdone can have side effects and should be closely monitored in children (as any medication should be). But sometimes, if you've exhausted all other options, medication is something to consider that can really change a child's life (and save your family life as well).

My story is a little different. We had to fight to get my SS ON medication. We went through 2 years of behavioral therapy, evaluations, preschools, pediatricians, rewards and/or discipline and unhelpful family. It was constantly, "he's out of control, we can't handle him" from everyone. School, grandparents, his BM. The only people he would calm down for were DH and I, and even then, it was very difficult to take him along to any social setting. Extreme temper tantrums, hitting and kicking people (and himself) when angry, throwing things, inability to sit still, absolute refusal to follow directions no matter what the prize or consequence may be.

Part of it is his upbringing. His BM lets him get away with murder and ENCOURAGES him to "play fight" and "defend himself". He's 6 1/2! She's one of those people who will take a swing at you if you even look at her the wrong way, and she is bound and determined to make him the same way. My DH's family is not exactly helpful either. Just choruses of "Oh, he's just a baby, he doesn't know any better." AUGGGH! No consequences for him whatsoever. Then, when they can't control him, they just tell DH to come get him (BM does this too) because they can't "deal with him".

His pre-K classes went the same way. He'd kick his pregnant teachers in the stomach. He threw his head back once during a tantrum and busted another teacher's nose. He would wallop some other kid with a toy if he didn't get his way. He wouldn't go to time out and would run around making his teachers chase him. He climbed the fence (twice!) in the playground and ran across a field. He has unbelievable anger issues. And it's not just a matter of discipline...DH and I worked with him for almost 2 years. We even tried behavioral therapy for a year with a well-recommended child therapist, and she got to the point she had to stop therapy and referred us to a specialist at Vanderbilt Hospital in Nashville because we weren't making progress. We had basically run her out of ideas Smile

He is on Risperdol, and has been for the past year and a half. He takes .25 ml (or the tablet equivalent) each night before bed. He has been diagnosed with ODD and PDD-NOS (a step above Asperger's, I believe, on the autism spectrum). We didn't want to go this route, but we had exhausted all other options, and it was either this or taking a chance that he will never be able to function on his own and he would eventually hurt someone.

The PDD-NOS diagnosis is due to his problems with communication and how he handles social situations. He gets nervous and does the hand-flapping/inappropriate blurting out. He doesn't respond as well to voice commands as he does pictures (PECS). The school system has been amazing in helping him with this. He actually was held back last year due to his problems focusing/aggression/communication and was placed in a special ed Pre-K class.

They were unable to get him to focus, though. I really feel sorry for him in this regard because it sounds like he wants to try to sit still and "be good", but he just can't help it. After the past 2 1/2 years of all of the above, we started him on a small dose of Focalin (I think it's 10mg 1x a day, extended release) in February with amazing results.

Because of all the hard work the school, DH, SS, and myself have put in, (plus the Focalin and Risperdol) he will be going into a standard K class in the fall with only an hour a day of resource help (for helping with social situations and how to cope). Eventually, he will not even need that.

I do hope one day he can go off the Focalin and the Risperdol. I don't like that he takes medication. We will eventually start therapy/counseling again, and we have other tools that we use as well. But I know that he is an extremely bright boy and I believe in my heart that these have improved his life (as well as our family).

So, in closing...back to topic:

If the medication was helping him (if he was showing improvement in school, home, etc.), then I would say that it's not necessarily a bad thing. But if it's not helping (and he's been diagnosed with depression), then he definitely needs counseling. I would think that with all the medications and diagnoses BM is stuffing down his throat, she'd be all for putting him in counseling too.

Stick's picture

I have a question for you... Do you think BM has Munchausen by Proxy Syndrome?

My SD suffered from severe depression and was suicidal. I believe she is also a little obsessive compulsive. We took her to therapy and they put her on Lexapro every night to help her depression and Seroquel to help her sleep at night, help her mind stop racing. She also is very much a psychosomatic illness kid. When she has to see her mom, she gets stomach aches and head aches and is exhausted all the time.

The medication has helped calm her down. So has the fact that she now lives with DH and I full time. We are working on her coping skills with a therapist. Eventually, we will be working her medication down as her coping skills improve.

I don't feel I have enough experience to give too much advice here, but I am wondering if you were able to get your ss off some of the meds, or have a guardian ad litem step in so it's not coming from you and DH. See through the courts what is really wrong with this kid and treat that rather than keep coming up with all these different diagnoses and meds. It is frightening and I share your concern that this child is being forced into being "disabled" rather than being truly disabled. Good luck!

Casper3's picture

I am not, in and of itself, against medicine. In fact, when SS12 was first diagnosed with ADHD at 5 years old and put first on Ritalin, then Adderal (less side affects) it really helped him. I was all on board. He could focus and actually sit down, read and retain an age appropriate book. He got A's and B's in school. DH and I felt he really had made progress and felt the med's helped. When BM said he had ODD, both DH and I were confused. This was at age 9. BM said he was out of control and wouldn't listen and asked if we had the same problem with him. We both said no. At our house, he was fine (outside of some acting out, that while annoying wasn't uncontrollable). That is when the Respirdal came in. He takes adult dosages of these. This is when his grades dropped. Last year is when BM said he had Asperger's syndrome and she actually called me before taking him to the dr. and asked me to look at a website about it and said that this is what SS12 has. I told her then that he didn't have those symptoms at our house. The next week he was on Lamotrigine. I truly believe, at this point, the meds are hurting more than helping. I would love to get him off them and start with a blank slate. But that is not an option.

I am glad to here that your SS is reacting favorably to his meds and that they are helping him to function appropriately at school. They can be a blessing, I know.

Stick's picture

Well, try to talk to your DH again, if you can. If this poor kid does not suffer from any of the symptoms while he is with you and then suffers them while he is with BM, that's a real problem! Especially if his grades were doing well, and now are going downhill. The kid could be depressed because he is being forced to be ill, when he is not. Just like smart kids fail when they are too smart for the grade they are in. Does that make sense? I'm not against meds either, and it's great that they helped. But BM is really hurting your SS. Look up Munchausen by Proxy and ask your DH about it. Maybe he will see your way of thinking.

I don't think you can start with a clean slate altogether, but you should be able to get him off some of these meds. Also, my SD has to see a psychologist because her counselor cannot prescribe medication. The psychologist meets with her each time the script is renewed. My DH and I go and meet with him as well once in a while. Maybe, if you can't start clean, maybe you could meet with the psychologist actually prescribing these meds??? It is a psychologist, right, not a general practitioner that BM is taking SS to?

Casper3's picture

DH has no rights to the boys in regards to medical, schooling, religion, etc. Just visitation. And so, we can in reality make no changes to the situation. SS12 did go to an Occupational Therapist for awhile, but only to the amount of sessions that insurance would pay for. I have brought up the Munchausen by Proxy to DH before but either he doesn't agree with me or doesn't feel it is worth fighting about. In some ways, he seems to have given up to the BM and is trying to just enjoy the time he has with the boys. He's not a bad father, he just doesn't want to make waves with BM. I am more confrontational.

I don't think that there is really a clean slate here either. I just wish we could.

Stick's picture

Girl.. I feel for you. I too, am confrontational. It's the only way I know how to move past something. I fight it out... until I'm right, or until I give in!! ha!!! Smile I am getting better about letting some things slide, but I don't ever feel too taken advantage of, so it works for me...

But a General MD Pediatrician? That's INSANE for those kinds of drugs. When we were taking SD, we had to take her first to counselor that suggested the meds... then we had to take her to the GP to follow up, and THEN the psychologist because they are heavy duty drugs!

I wish you could have your way too....