Interesting News From the Genetics Clinic
Real fast back story for those that don't remember: BM is constantly making up severe and debilitating conditions for SS13. A few years ago she had him and DH convinced that he was going to have to have 1/2 of his colon removed- turned out he needed a good poop. 2 years ago he had a "cardiac issue" so he couldn't go on a cruise with us- after a fight, we found out from the head of cardiology that SS was fine and there were no issues with him going on vacation. Her new thing is that he has Elhors-Danlos. She won't give any back up or provide doctor information.
I got the call from the genetics clinic today for his testing. We thought there was actual lab work that needed to be done to test for a gene. Nope. BM told us that she had this lab work done, and it was all confirmed that he has EDS. THERE IS NO LAB WORK, THERE IS NO GENE. I didn't know that there was no lab work but it was all explained out. It is actually a physical exam. I wound up talking to the head of that clinic and explained everything. He has an appointment and they are going to write us a letter for court explaining that he doesn't have it (after the exam, of course, but considering we went over his general health and she agreed that it is very unlikely) and then even went on to say she would write about the dangers of Munchausen Syndrome by Proxy. I love this chick!
So after this we will have THREE conditions that were unsubstantiated that she convinced this kid he had. I have given up with custody but please for the love of God let us get more visitation with this crap!
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That is the exact thing our
That is the exact thing our BM has been trying to prove SD14 has so she can get money from SSI! Sd14 doesnt have it either. What is it with crazy BM's wanting their kids to be sick. As a normal mom, that is the last thing I want for my kids.
We would LOVE full custody.
We would LOVE full custody. DH and I both have great jobs, BM doesn't work and lives on welfare. We have agreat home in one of the top school districts in the state and country. We have everything going for us on paper but for some reason can't get even simple visitation through the courts. The judge even turned down our request for him to come to our wedding so we had to change everything for SS to be there.
You must live in a
BM-centric area, like New York! Mommykins can do no wrong even though she is a whack job and is destroying her own kid. . .
Wonderful news! I was pretty
Wonderful news! I was pretty sure he didn't have EDS. She sounds like a real headcase.
Just a note though, there are over a dozen types of EDS and yes, there are genes they can test for but only some of the types have been identified through genetic testing. Some they are still trying to figure out which genes are causing it. The physical exam is most important for the most common type, hEDS as it does not have a definitive gene (although about 6 specialists in the US do whole exome sequencing and can identify patterns consistent with hEDS).
I have one of those geneticists and I have one of those patterns.
That does not change though that this BM needs serious help and is in danger of making her child believe he is disabled, for her own attention, sympathy and possibly to be needed by him.
I hope you get custody through the courts and things improve for your SS.
My SD really does have it,
My SD really does have it, mild case, that I would say comes from DSO bc someone with that condition has very soft skin, almost like a baby. DSO also doesn't grow much hair on his shins or chest. SD had to take take vitamins with extra calcium and they recommended eating lots of pickles. She did that for about a month and then promptly forgot about it.
BM also has claimed SS needed
BM also has claimed SS needed glasses and that’s sD had ADHD. Kids got tested and nothing.