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Help!!!!!! ANY PARENT WITH CHILD THAT HAS ADD/ADHD

worried_stepmother's picture

I am infuriated (so mad I dont even care if I spelled that right)!! SS7 got diagnosed with "adhd" in may (may 6th 2012 to be exact) and it is now August 10 2012 and this child has been on 5 medications!!!!! Now let me say to me that sounds like a bit much since he didn't start taking the meds until he got out of school. So he started his meds on may 28Th (that Monday after getting out of school on the 24th). So that's what like 8 weeks and meds have changed 5 times? He was started on strattera the dose was the lowest does possible. On it for about a week BM changed it cause "it wasn't working". needless to say this kept going all the time. She changed every dose within a 2 2.5 week period to where SS was taking 24(or 25 what ever the dosse is)mg a day the last time we had him (exactly 2 weeks ago and had just started that dose the weekend before so 3 weeks total on that dose). Now we get him and he has a completely different medication (kapvay) .1mg at night before bed that he has been on for a week. DH has told BM every time she has asked how a medication dose is working "he is doing ok but you have to give the medication a little longer to work I think." (He says that cause she always says "we will just up his meds" when we see her and she WORKS for SS's doctor who gives her samples since she says "I can't afford the medication" (yes she has insurance but she refuses to go to the pharmacy at the hospital like her insurance requires supposedly) and we have read up on strattera and everything says it takes 4-6 weeks to work AFTER REACHING TARGET DOSE.) Is this too may meds in such a short period? What would you suggest we do since telling BM what we think she just ups his medication and we have tried contacting the doctor but apparently he isn't getting the messages or she is trying to pull rant since she has custody and holds the insurance poloicy.

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worried_stepmother's picture

OMG thank u! I told DH "she is KILLING your son! I hate putting it that way but that is way too many meds in such a short time" I don't even think this doctor has seen him since the initial visit (begining of may) he is 6 and will be 7 in september but he has been EXTREMELY violent toward his 2 year old brother (my bioson) so much as to the point of physically hurting my son. Then when he gets in trouble for it he seeks out to make the day a hellacious day for everyone. We do what we can as far as punishments go but its getting to the point that he forgets simple things (example don't run in the house and with in literally 2 minutes he has forgot we said that) but before all the meds changing and all he would at least remember for a full day or more. I don't thin his primary care is specialized in ADHD/ADD (which I think is is ADD cause he is not and never has been hyper active) and just diagnosed him ADHD because the school told his mother he might be.

doll faced sm's picture

You need to get ahold of his dr. <---This!

What BM is doing is abuse! SS's Dr. is a mandated reporter, and this really needs to be brought to his/her attention.

worried_stepmother's picture

Trying to do so. I think she has something to do with us not being able to get intouch with him since she is a receptionist there and is SS's mother. I am sure they ask her and I feel that is morally wrong since we are concerned for the kid.

worried_stepmother's picture

I forgot to mention that she HAS NO MEDICAL TRAINING AND IS AN APPOINTMENT RECEPTIONIST at said doctor office. I am trained as a CMA and have never seen a child switch meds so much. Sad I feel for the kid and don't want him to suffer at his mothers stupidity.

worried_stepmother's picture

My thoughts exactly. She just keeps saying "well we will just up it" but doesnt say that the doctor has said to do so. Now since she ONLY getd samples I am hoping it is documeented cause if not it is he said she said and no proof to back up all the med changes so we would be screwed.

worried_stepmother's picture

Dh wad at initial doctor vist and said "i do not want him on,medication thst will make him a zombie where he walks around dead to the world. Actually I dont want him on meds at all." spawn (bm) "had to" fill out 2 serveys to dhs 1 which was my first red flag that something wasnt right. I have said since day one "his primary care doctor is not a good source u need a second opinion perferably of the certified in adhd or psychologist kind". But BM refuses to listen to us and will not allow us to get his insurance card to do so ourselves. Beee

worried_stepmother's picture

All it says is DH is to pay half the medical. Does that mean anything other than $$$?

worried_stepmother's picture

She has cudtody we get visitation. So I guess that means she.has sole custody. Cause we dont get him half the year it is just EOWD and 3 weeks of summer. This is so sad that I.am this.worried about a kid that is being told (by bm) that he doesnt have to listen to me etc.) If I could just turn the care off I would but I cant.

worried_stepmother's picture

Something about this feels wrong....yes!!! Very wrong and my gut is telling me this kid was misdiagnosed by a quack dr. that values his employee so he sides with her. Kid has never seen a therapist other than for speech at 4 years old because spawn (once again) thought he had speech problems and so put him in that. 1 visit a week every week for 6 weeks and he was talking bettsr...gee could it be that he grew up some more??

worried_stepmother's picture

thank you all for your help (and thank you in advance to any new posters). Dh and I have devised a plan to start taking time and date stamped photos of the medication bottle we are given along with making BM or her mother(who also takes care of ss) physically write down all medication instructions. So if the does changes we have written documentation from them on what we were told to give and we will make sure they date it and it is included in the picture of the med bottle. Also we will be seeking out an attorney to file for custody since she is apparently not worried about the best intrest of her child and we are. I will be sure to keep you posted on how that goes. In the mean while if you have any other suggestions (besides lawyer/ seek second opinion) feel free to post them so maybe I can do them as well. Smile so glad to see I was not imagining exactly how bad this could be and that I have pople like you that understand.

12yrstepmonster's picture

Most ADD meds are controlled substance. We have to pick up the Rx at Dr office every 30 days. We also had to sign a clause saying we don't get the Rx anywhere else but there.

Check out the guidelines in your state. Here even a non custodial parent has a right to medical records. The bad news is she's the receptionist. But I'd still request it.

Dd went to a child counselor, after two or three visits she wanted to test for ADD. We filled out the forms, she took two computer testing one without meds, one with a small dose of meds.

We were lucky in that dd does not have behavior problems.

Keep a log and take pictures of the meds that she sends. Try to communicate through email.

worried_stepmother's picture

Well SS7 just told me last night was the first time he has taken "bedtime medicine" (kapvay is given at night) and he has been walking around sad, tired, crying, and emotionally a wreck for the past hour now. Plus he has all the cold symptoms that you see in the side effects. Sad poor kid!!! He said "I seen dr. R yesterday and haven't taken medicine all week until last night." This disturbs me since BM NEVER EVEN TOLD US HE WENT TO THE DOCTOR! Plus she drastically took him off his "morning medicine" and told the doctor it made him "sick" but he has NEVER been sick on any of the strattera meds no matter the dose here. I am super concerned and if I could do it myself I would talk to his doctor but I am no where to be found on any of his stuff.

worried_stepmother's picture

OMG this sounds just tlike my situation...minus the dh stuff because I do the research, dh reads it and tells SPAWN, spawn then takes it upon herself to ignore ANY recommendations we make and then ups or changes SS7s meds without ANY notice to us. They have joint custody and dh has not once been told in the past 2 years when ss goes to doctor, dentist, or even if he goes to er for any thing but he is expected to know what half of the medical is.... If u ask me I think he could go to court and get half the medical dropped or make them court order the doctors to touch base with him since she works at ss.s doctor office and refuses to keep dh informed. The bm has not even called to check on ss7 all day today or yesterday. She thinks her mother has him. Her mother was keeping him this weekend for bm and had an emergency and called bm who NEVER ANSWERED HER PHONE so she called dh to get him. Smh bm calls dh a dead beat cause he refuses to call her to talk to ss7 because she always wants to bitch about money when she gets her support on time....but isn't she a dead beat mom....leaves kid all the time, will not answer if someone tries to contact her if she is with friends, changes meds so much it causes emotional instability, and let's not mention the fact that she talks crap about dh and me and our kids infront of ss making him resent and hate us.