You are here

The idea of him living with us is giving me severe anxiety

InvalidEntry's picture

Sorry if I sounds like an evil stepmom, but here's my story:

So, let me start with some background. When I met my DH, I was living a bit far from him, so I relocated to his city. He has one child, SS5. Prior to moving in together, my DH was living with his mom and dad to get help with SS5. BM hasn't been in the picture since the child was 1. Now, DH and I are living together in an apartment and saving for a house while SS5 is living with grandparents. SS5 was recently diagnosed as autistic. I was told prior to meeting him that he had a speech delay, but wasn't autistic. I was told he had been evaluated by a doctor. This was not at all true. When I met him, I could see he was very obviously autistic. He was only having a very small amount of speech therapy and had never been evaluated for autism. He still cannot speak 1 word. Luckily, DH was supportive in listening to my suggestions for getting him help. He's been diagnosed and has started a program very recently.

Now, let me just say, I know this is not SS5's fault that he has autism. However, it doesn't change my feelings knowing that. First, BM trapped my DH with this child. We actually do not know if it's his child. Everyone in the family is suspicious, including DH. However, he won't get a test (which is fine because at this point it won't change anything). We also can't do genetic testing to find out more about his condition because DH doesn't want to know the truth. I think he knows the truth deep down and it's not the answer he wants.

Like many stories on here, I feel no love for SS5. I have worked with kids before and I find him extremely difficult to bond with. I also find that I am not interested in catering to his special needs. I have realized that when a child has special needs, the biological connection parents have to the child is what makes them continue to help their child. I have no biological connection nor any bond to him at all, therefore I just feel like I want nothing to do with him. I know it sounds mean, but my dog is easier to bond with and love. 

Originally, DH said that SS5 might stay with his grandparents indefinitely and it was ultimately up to us. Now, grandparents keep going back and forth and saying they want him to stay with us because he's so much trouble. Obviously, taking care of a kid with so many issues stresses me out, too. This child is 5 with the mentality of an infant. It gives me severe anxiety thinking about him living with us. I get heart palpitations, heavy, tight chest, shortness of breath, the whole 9 just thinking about it every time it comes up. Right now, he only comes over for the day on the weekend. I don't even like that because he's so much trouble. I just don't know how to cope. My DH said we'll take it slow, but what if I can't handle dealing with him? Also, to be honest, I don't know that DH wants him, either. He has only taken care of him by himself for max 1 year when he was a baby. The rest of the time, his parents were taking care of him (SS5 has lived with grandparents for 4 years, which is another worry about how he will transition to living with us considering his condition). My DH works long hours, so if SS5 was to live with us, the burden of his care would fall primarily on me.

I have noticed that DH doesn't actively seek to spend time with SS5 and when he does go to see him, he doesn't try to play with him or do things with him. There's very little interaction, but he will say that he loves him and wants to see him etc. His actions are different than words. I get anxiety from this because I feel like I have to not only love SS5 unconditionally, but show this love physically all the time when I don't even see DH do it.

I also have some selfish concerns as well. We want to have a baby and there is no way that I would allow this child to take my attention away from my baby because he is so demanding. If I had to choose between the 2 at any point, of course I would choose my own blood and also the one that is the actual infant, not the one that is just an infant in the mind. It feels selfish, but what can I say? I don't feel like I should give someone else's child more attention than my own. I run scenarios in my head and then the anxiety comes. Like, what if the baby is crying and needs a diaper change and SS5 tries to run out of the house again and I'm the only one home. Should I leave my infant baby to chase him down? I don't know how other people deal with this.

I wish I wasn't in this position. I'm sure it sounds awful, but that's just how I feel. I wish people would stop telling me that when I married my DH I took his son as my own. Before this, I actually thought it was possible to love someone else's kid as your own. Now I know it's unnatural and biologically impossible. He isn't my own child and never will be, therefore impossible to love him in the same way. I am trying my best to just like him, but he's always in his own little world so it's extremely difficult to establish any relationship. I am as nice to the kid as I can possibly be, but that doesn't make any difference. Everyone is hoping his program will help him because if it doesn't the future is uncertain for everyone. I don't want to leave my DH and that's not really an option at this point. I feel he tries his best, but of course the kid will always be there even if I wish he weren't. I am just trying to find a way to cope with all of this so it doesn't affect my health. His family constantly changing their minds also doesn't help.

hereiam's picture

So, you were lied to from the beginning? Where is BM and why has she not been in the picture since the kid was a year old?

Your husband doesn't want to know the truth of whether this is really is son, yet doesn't really want to be a father to him, either.

I think you need to re-think this whole situation and if this is really the relationship for you.

This sounds like a case of bait-and-switch. Do not be suckered into being the primary caregiver of this child, when you know that is not what you want.

InvalidEntry's picture

BM is mentally disturbed herself. She has other children with similar issues and she has dumped them off on other people. She cannot get along with anyone and spends her time abusing drugs/alcohol and sleeping around, having more kids with randoms she doesn't take care of. This is why no one knows who my SS's father really is.

SteppedOut's picture

Your husband is responsible for the care of his son, it is 100% not right that he left him with his parents.

That being said, he is not your responsibility either.

I'm sorry, but this might not be the right man for you to be married to. You really need to think about that before  you get pregnant. 

His son should be living with him instead of his grandparents. If you can't deal with that (I don't blame you, I couldn't do it either), then you should divorce. 

ETA: That was a HUGE lie your husband told. I would have some major resentment because of that, resentment that I do not know I could get past. 

Merry's picture

This is your husband's son, or at least he has accepted responsibility as a father. He needs to step up and BE a father and not expect his parents to take care of the boy. At some point his parents will be unable to, or will refuse to do so. And then what?

But the boy isn't your responsibility either. Very few of us love our steps as we love our own, and many don't even like their steps. Admitting your limitations is important, and it is not a moral failing on your part. Do not allow yourself to become the default caregiver.

Are there options for the boy? Residential care if he's so disabled? Do you have recommendations from the doctor or social worker about best environment for him?

Most importantly, what is your husband doing about the future, other than kicking the can down the road? He's being totally irresponsible.

justmakingthebest's picture

I have an autsitic step child that is 20. He will never live on his own. He isn't speech delayed and actually works part time and is currently in welding school. He is age adjusted to 12-13. So it's like forever the worst age... 

BM Never had any custody and only supervised visitation since he was about 1 yr old. Nothing was ever hidden about my SS from me. I was given all of his medical records, allowed to speak to his teacher and therapist before DH and I even moved in together. I needed to know what I was getting into fully and DH understood that. 

I love my SS very much. He drives me CRAZY daily but he is one of mine now. 

The difference is- I understood before even moving in together that if I married my husband, I would never be an empty nester. That I would always have SS. That he won't ever drive. That he won't ever be self sufficent. 

Your SS can't live with his grandparents forever. That is not fair to them. They deserve retirment and peace. Knowing if your DH is the child's biological father doesn't even matter at this point. He is on the birth certificate and he has been raising him for 5 years. He is the father. 

You need to decide sooner than later if you are in this forever. It is A LOT and no one would blame you for walking away. It is obvious that your DH is in serious denial. He needs to get services started and NOW. 

simifan's picture

Big red flag you were lied to about his diagnosis - although prehaps no one ever bothered to get him tested. It is very sad that no one wants to take care of this child, but that does not make it your responsiblity. Listen to your gut, DH needs to figure out a solution that does not include you. This would be a deal breaker in my opinion. 

advice.only2's picture

If your DH isn't even willing to step up and be a parent why should you?  If it was me going forward I would expect DH to get the paternity test and then have him decide what his next course of action is.  This kid should at least be given the chance to find a family who will truly love him over a family who just wants to find people to dump him on.  Your DHs true character is showing through in all of this so take note. 

InvalidEntry's picture

Thank you to everyone that replied. I honestly don't even know what to make of this situation anymore. When I asked him why he didn't tell me everything that was going on with his kid before, he just tells me that his kid is perfect in his eye. It really boils my blood when he says that because it feels like a total cop out. I agree that SS shouldn't live with grandparents forever because he isn't their kid and not their responsibility. I also don't feel this is my responsibility. If he was my birth child or I was in the picture sooner, I would've had him start a program when he was 2-3 years. Why should I pay the price for their delayed treatment? 

DH is definitely in denial. He is happy to pass the buck and not deal with anything. I am worried about what will happen in the future because I don't want to be the one to take the buck. I don't even know how to talk to him about it without coming off as if I don't like the child or don't want him around (which is probably true, but I don't want that to come out during a sensitive discussion). DH is fine to just let things go and happen as they come, but I don't know if I want the kid around forever. I don't know how I can make the decision at this point with so many uncertainties. When I ask questions, I can't get an answer because DH has no answer. It's as if he hasn't thought much about it either. I don't really want to get a divorce because I do love my DH and I don't really like to use divorce as an option. However, I don't like living with these uncertainties and always wondering how bad it's going to get and how much I will have to handle and how much I will have to "be patient" and give in on my end. I am trying to figure how I can make this work for me.

Also, without going into too much detail, there is a huge cultural element present here as well. I don't want to sound like I'm making excuses for DH, but he and his family are from another country where autism is highly frowned upon. My MIL doesn't even like to hear the word autism. I am trying to be understanding to the cultural differences, but with all this I feel like disengaging and letting them just do everything with the kid. I can help out with basics like making meals and pickups/dropoffs, but other than that I think disengaging might be a good idea at this point.

SteppedOut's picture

If you just disengage, you also are kicking the can. 

It sounds like ss will never be able to live on his own. What happens when your husband's parents are unable to care for him? Hoe old are they? They won't be around forever... 

I know you don't want to divorce and you love your husband... but? You want your own children... how is that going to look when (not if, but when) your husband has to take custody of his child? 

Does your husband make enough to pay for care for his son when he is at work? Will he actually step up and care for him when he is home? Can you imagine your retirement/golden years having his son live wirh you? 

IMHO, you should corner your dh and get this all figured out - sooner rather than later.

Oh and the bs about "in my eyes he's perfect", um ok, so, he still lied about testing. Why did he do that? (To reel you in, that's why)

InvalidEntry's picture

I agree that he was reeling me in. I cornered him on this as all the changes in information where written in text and asked him why. He said he couldn't really remember what he said back then. I know he knew what he was saying and was trying to not scare me off. I am honestly not sure if SS will be able to live on his own. He's just started his program so we aren't sure what progress he will make. We are hoping by starting now he will someday be able to live on his own, but only time will tell. DH is very in denial because he still talks about doing things with him someday that I know are going to be impossible regardless. 

hereiam's picture

When I asked him why he didn't tell me everything that was going on with his kid before, he just tells me that his kid is perfect in his eye.

What a load of crap. He didn't tell you because he was the one trapping YOU.

justmakingthebest's picture

Totally agree. He didn't tell you because he wanted you to fix it all. He could have been in denial sure, but let's be real. He needed a "wife" to come in and make it all better because that is what us wifey's do. Fix all of their broken bits so that they can keep living the delusional dream. 

I will never be that kind of woman again. 

InvalidEntry's picture

I think this is why it boils my blood so much. He could have been honest to me and let me make up my own mind. Before this, I was quite independent. I was living by myself, taking care of only me, doing what I chose to do and not answering to anyone. It's one thing to add a guy with a kid to the mix, but totally different if that kid has special needs with HUGE demands. My life has totally upended without the ability for me to think through and decide if I wanted my life to change that much.

hereiam's picture

As much as you think you love your husband, you have to remember that HE is the one who took that from you, the ability to decide if this was the life you wanted. And, I don't believe for a minute that he didn't have an agenda.

 

InvalidEntry's picture

You are 100% correct and I have realized this. I have just been wondering what that agenda may be. Does he want childcare for his kid? Does he want someone to provide additional income so he can get away from his parents? Does he want someone to sleep beside him and have a roll in the hay whenever he wants? I really have no idea what's in his head. I am just trying to work my way through this because divorce is not on the table for me for me unless the situation is dire. 

hereiam's picture

Probably, all of the above.

You have been deceived and are being used. You will not be able to have the family you want, in this situation. Your choice in the matter was taken from you. That is pretty dire, to me.

His own parents see you as their way out.

InvalidEntry's picture

I also feel that way, too. I definitely feel like my MIL can't wait to pass the burden to me. At the same time, she keeps going back and forth. One minute she wants him to live with us. The next, she thinks we can't take care of him well enough. Well she's probably right about that. She's retired and focuses all attention on him. I have no intention of doing any such thing. In fact, when and if we have a baby together, I think this kid will get a lot less attention than he's getting now and I don't know if he can get the attention he requires living with us. I definitely have a lot to think about. I am questioning if we can have the kind of family I want. I have realized my desire to have children has descreased because of the situation with SS. I know I don't want to burden my future kids with a stepbrother that's has so many issues. It's a lot to consider. 

SteppedOut's picture

He won't be a step-brother, he will be a half brother. And after you and your husband pass, do you want your child to be burdened with his care? 

If you have a child with your husband, I guarantee that is when your husband's parents will want him to take HIS child.

 

InvalidEntry's picture

This thought has crossed my mind and I absolutely do not want to have children just to have to serve the burden of taking care of their half-brother. My DH has mentioned that any kids we have will be able to look out for SS. I told him flat out that I am not having kids so they will eventually take care of SS when we can't. He said he means they would take care of each other like full siblings, but I am not convinced. And the last part is what worries me the most. I will definitely not be ready to take this child on with an infant. NO WAY

shamds's picture

Kid and do the activities to help boost speech and the basics he should be doing at that age. If he loves his kids then he has no excuses for not doing that. 

My husband works crazy hours, both our kids are soeech delayed which we see a speech therapist for to help (family history on hubbys side) but the kids with these delays were all smart and excelled in studies etc. hubby knew since years ago that he had to step up and be an active dad, that doesn’t mean watching them watch tv and play whilst you nap on the couch. 

You do things together like read books, play with playdo and talk about it, role play etc. you engage and stimulate that interaction but he isn’t doing this and having a kid with him when you have the signs there he is incapable of being an active parent

InvalidEntry's picture

I agree. I am concerned that he won't be an active parent. I just cannot tell if he isn't an active parent because of SS's autism or he will always be that way regardles. By the way, I have tried doing activities like that with SS and he cannot maintain attention long enough to try to repeat sounds or words. His attention span right now is only a few seconds. He is not able to focus in order to try to imitate anything, which I think is also why he hasn't learned to put on/take off clothes, use the toilet, feed himself, etc. If I bring out cards to try to teach him words or sounds, he will take the card and start tapping it which is his form of stimming. I cannot really blame DH for not doing this because likewise I am not able to do much to engage with him either and I have worked with kids a lot in the past. It's things like this that lead me to say earlier I feel it's extremely hard to bond with SS.

susanm's picture

Have you told him that all of this makes you nervous about having children with him?  I would be curious whether his reaction would be to reassure you or to become defensive and hostile.  Obviously becoming defensive would be a pretty bad sign and tell you that you are very right to be worried!

It is reasonable for him to be overwhelmed but he is just going to have to man up and get it together.  It is really unfair of of him to dump his responsibilities on his parents the same way that the mother dumped her responsibilities on him.  No one knows instinctively how to care for special needs children.  People have to educate themselves but there are resources available and he can access them.  The sooner kids get services, the more likely they are to have a good outcome and a happy life.  But just living with a loving set of grandparents is not going to do much for him and he is not your responsibility.  And frankly I would be furious at the transparent lies you were told.  You have every right to demand that he make a plan and put it into action if he wants to have a future with you.

InvalidEntry's picture

I have told him this a couple of times. He didn't become hostile. I would say he was defensive over his current actions and tried to reassure me, but I wasn't very convinced because I can't say I believe his reasons for not doing his best right now. I have questioned why he didn't get SS help earlier with no specific answer. He has been uninvolved, but I don't know why. Sometimes I think the revelation comes down to his wording and what I can tell from conversations with him is that he didn't actually want SS, but took him out of responsibility. If we have a baby together, he actually wants the baby, perhaps because the relationship is loving and stable or maybe he has someone to share the work with (not sure). He's careful with his wording sometimes, but the more we talk the more I hear, which in combination with his lack of interest in spending time with SS makes more sense that this is how he feels rather than "my kid is perfect in my eyes." It doesn't matter at the end of the day, though, because SS will have to live with us at some point and you are correct. When I realized he had lied big time, I was very mad. When I brought it up, I expected an explanation, but I never got any. It was just like well you've seen how he is now and I was just expected to deal with it. No plan or compromise or anything. Even though he lied and I was angry about it, what could I do except leave? DH and I are actually pretty happy together when it's the 2 of us. If SS wasn't in the picture, I feel like everything would be fine, which leads me to feeling resentful of SS and that's not really what I want. 

I think I just need to make my own rules and set my own expectations about what I will/won't do. I am not sure how to effectively communicate this without an argument, though. Last time I said I didn't feel comfortable watching SS for several hours after school by myself until DH gets home, DH was very angry about it. He thinks since I would do this for my own child, I should do it for his and it's only a few hours so it shouldn't be a big deal, but it is a big deal because he isn't my child and I don't want it to take away time from my own child (if we have a child). I am expected to act like the kid's BM and do everything for him, but I don't want to.

hereiam's picture

Last time I said I didn't feel comfortable watching SS for several hours after school by myself until DH gets home, DH was very angry about it. He thinks since I would do this for my own child, I should do it for his and it's only a few hours so it shouldn't be a big deal, but it is a big deal because he isn't my child and I don't want it to take away time from my own child (if we have a child). I am expected to act like the kid's BM and do everything for him, but I don't want to.

Read this ^^^ again and again.

I know you think you love him (and you think that he loves you) and you don't want to divorce, but this guy has lied to you, he has conned you, and he is using you.

 

InvalidEntry's picture

I tried to have a talk with DH last night again about my worries after getting opinions on here. The talk didn't amount to much as usual. He said the same thing as he usually says: he believes that whatever I do for my child, I should do for his. I tried to explain to him that I am a stepmom, not a bio mom. I didn't have the child myself so the responsibility isn't mine. He thinks that since we are married I should share the responsibility with him. I reiterated I don't mind helping with things that I am COMFORTABLE helping with, but if I choose to help that should be up to me. He said he thought I was different from other girls and he waited so long to date someone because he was looking for someone that could love SS like their own kid. When we first started talking, he told me girls here don't like kids. Of course I like kids. What he didn't say is his son has serious challenges and special needs and no one wanted to deal with the baggage. Not that they don't like kids. I don't even know how to respond to this.When I try to question the reason of him bringing me into the relationship and allude to him wanting to use me for childcare, he says that he and SS were fine before. He says he had a lot more expendable income and could have taken a job with less pay if need be. I'm not sure how he can say this considering he's working the same job now that he was before he met me and he is actually in debt. His child was definitely not doing well and no improvement or even action towards improvement. Me, however, yes I was definitely better. I had a decent paying job, more independence, no debt and less obligations. I don't know why he even brings this up because I don't.

I also tried to explain again that being a stepmom will mean that I will naturally have a stronger tie to my own child. I would not choose his child over mine ever. That's just nature and ingrained in us as human beings. It's not something I can change and I already know that is how I would feel. If I had to choose between the 2, I would choose my own child. I know that and I don't like being forced into the position of having to make a choice. He said that I said before (a long time ago before I had even met the child) that I wanted to be like a mom to SS. I did say that and at the time I thought it was possible and also under the impression the child had been tested  by a doctor and was not autistic. I was not made aware of his problems and issues at all. DH wasn't really angry, but he seemed disappointed. He was saying how he is lucky he always has his family to back him up and this is why his family doesn't really trust me to be alone with SS and he doesn't fully trust me either. I was like well then why are we even talking about this? If everyone feels that way why would he ever live with us and why would I ever have to experience the scenarios I've laid out. It makes absolutely no sense to me.

DH is in denial about how bad his child's behavior is. He feels like me watching the kid for a few hours alone every day is no big deal (mind you, he said he didn't fully trust me alone with SS) because his kid doesn't get in to trouble. I had to remind him how the kid often tries to escape grandparent's house. DH denied it, saying his son isn't tall enough and threatened to call his mom to confirm. I was like that's ridiculous as this is a discussion between us and your mom has told you several times. I told him the last time she found him in the garage under the car. I told him when I went over to the house yesterday (I often go to see SS by myself when DH is working. I actually spend more time with SS than DH right now), SS had put a bottle of Clorox in his mouth. What if he had opened it and drank it? I told him that he doesn't know what his mom goes through on a daily basis. He just said he is thankful for his mom's help, but he is living in a fantasy world. He has been spoiled by his family with childcare and doesn't know the reality. I am not willing to devote 100% of my time to watching a child that could accidentally end up in the ER nearly everyday and I am not willing to pickup the burden of childcare his mom endures everyday, either.

In the end, we agreed to speak to a counselor to get a second opinion and try to arrive at some sort of agreement on how to proceed with this. There are things he thinks I should be doing and there are things that I feel I don't need to do because it's not my responsibility. I think it would be helpful to have someone listen to both sides and workout an agreement with us. By the way, I think if DH ever stumbled across this thread he would know this about him ROFL I wonder if that would be a good thing. Maybe he would wake up from the denial *lol*

Rags's picture

Far from impossible, many responsible true adults live children they have no biological relationship with.  Adoptive parents for example.

That said.  Why are you there?  You knew this guy had a special needs child when you spawned with him.

For yourself, this man and his 5yo leave and don't pollute their lives with your presence.  Give your own child a relationship with its father and brother without you polluting that family.

The grandparents need to return they child to his father who needs to man up.

This is tragic on so many levels.