I am going crazy and amazingly has nothing to do with bm or sk's
Well this is the first time I have posted a blog, but I totally feel helpless right now and I need some advice. Last week at my bd's (11) parent teacher conference we talked about her being autistic. I know this is not the end of the world, I am just having a really hard time with this. She is developmentally delayed and has seisure disorder.She was also diagnosed anorexic last year do to the fact that she is 11 and weighs 60 pounds, she has actually dropped below the 5th percentile on the height weight chart.
My mom is a physician and she helped me find a doctor that could definately diagnose her with the autism but her appointment is not until june of 2010.So we get to sit and wait all of this time wondering if that is truly going to be the diagnosis. She will be starting middle school in the fall of 2010. She has so many things holding her down and she is a wonderful little girl, generally happy and high spirited. I was wondering if anyone has a child that is autistic or knows of someone that does, I am not too familiar with this and I would like more info on it.
As a parent you want so much success for your child and it is so frustrating knowing that she has all of these struggles and to know that she is robbed of so many things that the average person will be able to acheive. I don't want to expect too much of her if she is not cappable of it, but I don't want to use this as an excuse to allow her to do things to just say she is handicapped.
I know this is long my head is just so full and emotional.
Your prayers would be greatly appreciated too.
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I have a nephew who has autism
However he was diagnosed at 2 years, he cannot self feed, cannot dress, himself, does not talk and is not potty trained. He will be 5 in March. My nephew could be much more advanced if his mother worked with him at home as school and therapy is not enough. He requires a 40hr week work with time. What sort of delays does your daughter have and I am sorry for asking but you said she is 11...what have her doctors said thus far about her? Also June 2010 that is long way away could her pediatrician not get her a referral and ASAP?
my son has Autism
we go tomorrow for that matter to start testing on him to see just where he is at on the spectrum. He is 2 1/2 . I have had early intervention services for him from 18 months old, and we do that 2 times a week, plus go to a play group for PDD kids 1 time a week. My son cannot talk, and he has alot of sensory issues/food issues. He has made good progress though in some areas, but it is alot of hard work, and sometimes it's stressful. Try going to Early Intervention to start some services for her, and they may be able to help push for her to be seen and diagnosed. We got services by, believe it or not, contacting someone I knew who worked for D.S.S. , and he helped me get in touch w/ E. I., and get started with them. I read everything I can get my hands on about it. Autism Speaks is a good site, so is SonRise. P.M. me if you want to talk more about it, I'll share as much as I can. I can relate to how you must feel right now. "We cannot change the cards we are dealt, just how we play the hand."~ Randy Pausch
2010?!?!
That's crazy!! I have a few friends with autistic children and my step-mother teaches autistic children in the public schools. One thing that they all agree on is a gluten-free diet. SM said that some of her kids were completely non-verbal and they have now been integrated into regular classroom environments within a very short time of being gluten-free. It's hard to do, it basically means ONLY fresh fruits, veggies, and meat, and you can almost never eat out, but so worth it if it makes this kind of a difference.
Have you tried that Chel?
yes, we are trying...
but our son has alot of issues with food, that ties in with his sensory. Our doc. told us to get in as much calories as possible, so we don't follow it to a T, but I do know some families who do it, and some have had great results, and some, minor differences.It's different for some kids.Some Gluten free foods are also more expensive, and that can be a struggle some times. We are doing all that we can, and the best we know how. I'm willing to do anything to make a difference. "We cannot change the cards we are dealt, just how we play the hand."~ Randy Pausch
My nephew
only eats smooth foods like baby food with the cereal and to ensure he is getting the nutrients he needs he gets pedia sure daily with each meal mixed in his cereal
Gluten free foods
also taste like dog biscuits. That's got to be tough, dealing with food issues too. I have very limited knowledge of it, it just seemed like something worth trying. Good luck to you Chel and SME!
I have had to push for alot
I have had to push for alot of this myself, and we do not have to have a referral so my mom called the dr for me and they are sending paperwork for me to fill out and there might be a way to move the appointment up. If this is truly autism it is very mild. She can talk, walk, and is in a regular classroom with a full time para, in which they give her adaptions and she is not near grade level.When she starts middle school she will be in a special education classroom. I have read a little bit about autism and have been around a few children with it and then just observing my daughter I could see some of the traits in her. She has seisure disorder and is delayed probably about 3 to 5 years. I want her properly diagnosed and I think it has been over looked by the doctors because of her seisures. But the older she gets the more I noticed and questioned.
"Love is strong yet delicate. It can be broken. To truly love is to understand this. To be in love is to respect this."
Look into Asperger's
I have had a few kids in class with that particular variation. But I agree with everyone else, that appointment needs to be moved up.
You also might want to check out celiac.com for some recipes and resources for a gluten free diet. I have made some of the recipes and they don't all taste like cardboard. It takes some getting used to as gluten does add to breads, but it isn't that bad. That website can also help you to completely eliminate gluten from the diet. It pops up in odd places - like some soy sauces or some vitamins - and this site lists safe and unsafe foods.
Good luck!
marika
I have Asperger's
and I agree with everyone here that the appointment needs to be moved up. WAY up.
What has impacted me the most is that I am a shy, reserved person. I was teased in school and feel comfortable with the small group of friends I have. I also have a lot of obsessions like '60s rock music and family history. I spend a lot of time on the computer- that's common for people with autism. I also touch my mouth a lot- also common for people with autism.
You might also want to check out the Autism Society of America's webpage:
http://www.autism-society.org/site/PageServer